Gabi Conecker ৰ দ্বাৰা পোষ্ট
স্নায়ু উদ্দীপক- এটা VNS, DBS, বা RNS সহায় কৰিব পাৰেনে?
Have you wondered whether vagus nerve stimulators (VNS) might help reduce the intensity of your child’s seizures? What about a responsive neurostimulator (RNS)? Deep brain stimulator (DBS)? This webinar shares…
আৰু পঢ়কThe ABCs of Clinical Trials Part 2 – What Every Rare Disease Family Should Know
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – What Every Rare Family Should Know,” which was held on October 21st, 2020. Our Caregiver…
আৰু পঢ়কThe ABC’s of Clinical Trials Part 1 – The Basics
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – Get Your Community Prepared,” which was held on September 14th, 2020. This webinar included a…
আৰু পঢ়কমৃগীৰোগত হঠাৎ অপ্ৰত্যাশিত মৃত্যু (SUDEP) প্ৰথম খণ্ড: আমি কি জানো?
What do we know about SUDEP? What don’t we know? What is the state of the research? This webinar helps answer those questions, and more, with three experts: Sally Schaeffer…
আৰু পঢ়কCuring the Epilepsies Part 2
This is a recording of the second webinar in this series—developed in conjunction with the the Epilepsy Leadership Council and the Rare Epilepsy Network—on Curing the Epilepsies, which was held…
আৰু পঢ়কCuring the Epilepsies Part 1
This is a recording of the webinar “Curing the Epilepsies: Part 1,” which was held on September 14th, 2020. This is a recording of the first webinar in this series—developed…
আৰু পঢ়কRescue Medications for DEEs Series – Part 4
This webinar was originally broadcast live on August 12, 2020 and featured a review of the first 3 webinars in the Rescue Medications for DEEs series and a panel of…
আৰু পঢ়কঅটোনমিক ডিছফংচন/ডিছ’ট’ন’মিয়া
Does your child suffer from digestive and/or urinary motility problems? Do they suffer from temperature regulation issues? Do they have irregular blood pressure and/or heart rate? When you have ruled…
আৰু পঢ়কSaving Our Telehealth for DEE Families
This is a recording of the webinar “Saving Our Telehealth,” which was held on July 20th, 2020. For families who have trouble leaving the house with their medically fragile children,…
আৰু পঢ়কRescue Medications for DEEs Series – Part 3
This webinar was originally broadcast live on July 22, 2020 and featured a panel of caregivers sharing their experiences utilizing rescue medications for DEEs. This third webinar of the Rescue…
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