Posts by Gabi Conecker
Nerve Stimulators- Could a VNS, DBS, or RNS Help?
Have you wondered whether vagus nerve stimulators (VNS) might help reduce the intensity of your child’s seizures? What about a responsive neurostimulator (RNS)? Deep brain stimulator (DBS)? This webinar shares…
மேலும் படிக்கமருத்துவ பரிசோதனைகளின் ஏபிசிகள் பகுதி 2 - ஒவ்வொரு அரிய நோய் குடும்பமும் தெரிந்து கொள்ள வேண்டியது
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – What Every Rare Family Should Know,” which was held on October 21st, 2020. Our Caregiver…
மேலும் படிக்கஏபிசியின் மருத்துவ சோதனைகள் பகுதி 1 – அடிப்படைகள்
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – Get Your Community Prepared,” which was held on September 14th, 2020. This webinar included a…
மேலும் படிக்ககால்-கை வலிப்பில் திடீர் எதிர்பாராத மரணம் (SUDEP) பகுதி 1: நமக்கு என்ன தெரியும்?
What do we know about SUDEP? What don’t we know? What is the state of the research? This webinar helps answer those questions, and more, with three experts: Sally Schaeffer…
மேலும் படிக்கCuring the Epilepsies Part 2
This is a recording of the second webinar in this series—developed in conjunction with the the Epilepsy Leadership Council and the Rare Epilepsy Network—on Curing the Epilepsies, which was held…
மேலும் படிக்கCuring the Epilepsies Part 1
This is a recording of the webinar “Curing the Epilepsies: Part 1,” which was held on September 14th, 2020. This is a recording of the first webinar in this series—developed…
மேலும் படிக்கRescue Medications for DEEs Series – Part 4
This webinar was originally broadcast live on August 12, 2020 and featured a review of the first 3 webinars in the Rescue Medications for DEEs series and a panel of…
மேலும் படிக்கதன்னியக்க செயலிழப்பு / டிசாடோனோமியா
Does your child suffer from digestive and/or urinary motility problems? Do they suffer from temperature regulation issues? Do they have irregular blood pressure and/or heart rate? When you have ruled…
மேலும் படிக்கDEE குடும்பங்களுக்கு எங்கள் டெலிஹெல்த் சேமிப்பு
This is a recording of the webinar “Saving Our Telehealth,” which was held on July 20th, 2020. For families who have trouble leaving the house with their medically fragile children,…
மேலும் படிக்கRescue Medications for DEEs Series – Part 3
This webinar was originally broadcast live on July 22, 2020 and featured a panel of caregivers sharing their experiences utilizing rescue medications for DEEs. This third webinar of the Rescue…
மேலும் படிக்க