Posts by Gabi Conecker
神經刺激器 - VNS、DBS 或 RNS 有幫助嗎？
Have you wondered whether vagus nerve stimulators (VNS) might help reduce the intensity of your child’s seizures? What about a responsive neurostimulator (RNS)? Deep brain stimulator (DBS)? This webinar shares…
閱讀更多臨床試驗的基本知識第 2 部分 – 每個罕見疾病家庭都應該了解什麼
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – What Every Rare Family Should Know,” which was held on October 21st, 2020. Our Caregiver…
閱讀更多臨床試驗的 ABC 第 1 部分 – 基礎知識
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – Get Your Community Prepared,” which was held on September 14th, 2020. This webinar included a…
閱讀更多癲癇意外猝死 (SUDEP) 第 1 部分：我們知道什麼？
What do we know about SUDEP? What don’t we know? What is the state of the research? This webinar helps answer those questions, and more, with three experts: Sally Schaeffer…
閱讀更多治愈癲癇第 2 部分
This is a recording of the second webinar in this series—developed in conjunction with the the Epilepsy Leadership Council and the Rare Epilepsy Network—on Curing the Epilepsies, which was held…
閱讀更多治愈癲癇第 1 部分
This is a recording of the webinar “Curing the Epilepsies: Part 1,” which was held on September 14th, 2020. This is a recording of the first webinar in this series—developed…
閱讀更多DEE 救援藥物系列 – 第 4 部分
This webinar was originally broadcast live on August 12, 2020 and featured a review of the first 3 webinars in the Rescue Medications for DEEs series and a panel of…
閱讀更多自主神經功能障礙/自主神經功能障礙
Does your child suffer from digestive and/or urinary motility problems? Do they suffer from temperature regulation issues? Do they have irregular blood pressure and/or heart rate? When you have ruled…
閱讀更多為 DEE 家庭拯救我們的遠距醫療
This is a recording of the webinar “Saving Our Telehealth,” which was held on July 20th, 2020. For families who have trouble leaving the house with their medically fragile children,…
閱讀更多DEE 救援藥物系列 – 第 3 部分
This webinar was originally broadcast live on July 22, 2020 and featured a panel of caregivers sharing their experiences utilizing rescue medications for DEEs. This third webinar of the Rescue…
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