Posts by Gabi Conecker
Нерв стимуляторлору - VNS, DBS же RNS жардам бере алабы?
Have you wondered whether vagus nerve stimulators (VNS) might help reduce the intensity of your child’s seizures? What about a responsive neurostimulator (RNS)? Deep brain stimulator (DBS)? This webinar shares…
Кененирээк окууКлиникалык сыноолордун ABCs 2-бөлүк – Ар бир сейрек ооруган үй-бүлө эмнени билиши керек
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – What Every Rare Family Should Know,” which was held on October 21st, 2020. Our Caregiver…
Кененирээк окууКлиникалык сыноолордун ABC 1-бөлүк – Негиздери
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – Get Your Community Prepared,” which was held on September 14th, 2020. This webinar included a…
Кененирээк окууЭпилепсиядан күтүлбөгөн өлүм (SUDEP) 1-бөлүк: Биз эмнени билебиз?
What do we know about SUDEP? What don’t we know? What is the state of the research? This webinar helps answer those questions, and more, with three experts: Sally Schaeffer…
Кененирээк окууЭпилепсияны айыктыруу 2-бөлүк
This is a recording of the second webinar in this series—developed in conjunction with the the Epilepsy Leadership Council and the Rare Epilepsy Network—on Curing the Epilepsies, which was held…
Кененирээк окууЭпилепсияны айыктыруу 1-бөлүк
This is a recording of the webinar “Curing the Epilepsies: Part 1,” which was held on September 14th, 2020. This is a recording of the first webinar in this series—developed…
Кененирээк окууDEE үчүн куткаруучу дарылар сериясы – 4-бөлүк
This webinar was originally broadcast live on August 12, 2020 and featured a review of the first 3 webinars in the Rescue Medications for DEEs series and a panel of…
Кененирээк окууАвтономиялык дисфункция/Дисаутономия
Does your child suffer from digestive and/or urinary motility problems? Do they suffer from temperature regulation issues? Do they have irregular blood pressure and/or heart rate? When you have ruled…
Кененирээк окууDEE үй-бүлөлөрү үчүн теледен соолукту сактоо
This is a recording of the webinar “Saving Our Telehealth,” which was held on July 20th, 2020. For families who have trouble leaving the house with their medically fragile children,…
Кененирээк окууDEE үчүн куткаруучу дарылар сериясы – 3-бөлүк
This webinar was originally broadcast live on July 22, 2020 and featured a panel of caregivers sharing their experiences utilizing rescue medications for DEEs. This third webinar of the Rescue…
Кененирээк окуу