Posts Tagged ‘research’
ডি ই ইসমূহৰ মাজেৰে ক্লিনিকেল ট্ৰায়েল আৰু নতুন চিকিৎসাৰ সুবিধা বৃদ্ধি কৰা
এই ৱেবিনাৰৰ ৰেকৰ্ডিং হৈছে ২৯ এপ্ৰিল, ২০২৪ তাৰিখে অনুষ্ঠিত হোৱা ৱেবিনাৰৰ ৰেকৰ্ডিং।
আৰু পঢ়কৰেকৰ্ডিং – গুৰুতৰভাৱে আক্ৰান্ত জনসংখ্যাৰ বাবে আগতীয়া ফলাফলৰ ব্যৱস্থা
Building a Consortium to Advance Outcome Measures for Severely Affected Populations This is a recording of the second workshop, held November 11th 2021, focused on Building a Consortium to Advance…
আৰু পঢ়কৰেকৰ্ডিং – অৱস্থা আৰু সুযোগৰ মূল্যায়ন
ASSESSING STATUS AND OPPORTUNITIES FOR DEVELOPING OUTCOME MEASURES FOR THE MOST SEVERELY AFFECTED POPULATIONS This is a recording of day one of the workshop, held November 4th 2021, and was…
আৰু পঢ়কWhat can YOU do to help cure the epilepsies?
This is a recording of webinar which was held on October 20, 2021. This special session brought together the leaders from government, clinician-researchers, and advocates who devoted two years to…
আৰু পঢ়কThe ABCs of Clinical Trials Part 2 – What Every Rare Disease Family Should Know
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – What Every Rare Family Should Know,” which was held on October 21st, 2020. Our Caregiver…
আৰু পঢ়কThe ABC’s of Clinical Trials Part 1 – The Basics
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – Get Your Community Prepared,” which was held on September 14th, 2020. This webinar included a…
আৰু পঢ়কCuring the Epilepsies Part 2
This is a recording of the second webinar in this series—developed in conjunction with the the Epilepsy Leadership Council and the Rare Epilepsy Network—on Curing the Epilepsies, which was held…
আৰু পঢ়কCuring the Epilepsies Part 1
This is a recording of the webinar “Curing the Epilepsies: Part 1,” which was held on September 14th, 2020. This is a recording of the first webinar in this series—developed…
আৰু পঢ়ক