Innlegg merket ‘research’
Øke tilgangen til kliniske studier og nye behandlinger på tvers av DEE-ene
Dette er et opptak av webinaret holdt 29. april 2024. Dette er en samtale om en lovende klinisk utprøvingsmodell for nye epilepsibehandlinger som akselererer tilgangen til...
Les merOPPTAK – Forhåndstiltak for sterkt berørte befolkninger
Building a Consortium to Advance Outcome Measures for Severely Affected Populations This is a recording of the second workshop, held November 11th 2021, focused on Building a Consortium to Advance…
Les merOPPTAK – VURDERE STATUS OG MULIGHETER
ASSESSING STATUS AND OPPORTUNITIES FOR DEVELOPING OUTCOME MEASURES FOR THE MOST SEVERELY AFFECTED POPULATIONS This is a recording of day one of the workshop, held November 4th 2021, and was…
Les merHva kan DU gjøre for å kurere epilepsiene?
This is a recording of webinar which was held on October 20, 2021. This special session brought together the leaders from government, clinician-researchers, and advocates who devoted two years to…
Les merABCs of Clinical Trials del 2 - Hva enhver familie med sjeldne sykdommer bør vite
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – What Every Rare Family Should Know,” which was held on October 21st, 2020. Our Caregiver…
Les merABC's of Clinical Trials del 1 – Grunnleggende
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – Get Your Community Prepared,” which was held on September 14th, 2020. This webinar included a…
Les merKuring av epilepsiene del 2
This is a recording of the second webinar in this series—developed in conjunction with the the Epilepsy Leadership Council and the Rare Epilepsy Network—on Curing the Epilepsies, which was held…
Les merKuring av epilepsiene del 1
This is a recording of the webinar “Curing the Epilepsies: Part 1,” which was held on September 14th, 2020. This is a recording of the first webinar in this series—developed…
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