Posts Tagged ‘research’
增加 DEE 中臨床試驗和新療法的可及性
這是 2024 年 4 月 29 日舉行的網路研討會的錄音。
閱讀更多記錄－針對嚴重受影響人口的預先結果措施
建立聯盟以推進針對嚴重受影響人群的成果措施這是 2021 年 11 月 11 日舉行的第二次研討會的錄音，重點是建立聯盟以推進…
閱讀更多記錄－評估現況和機會
評估為受影響最嚴重的人群制定成果措施的現狀和機會這是 2021 年 11 月 4 日舉行的研討會第一天的記錄，是…
閱讀更多您可以做些什麼來幫助治癒癲癇？
This is a recording of webinar which was held on October 20, 2021. This special session brought together the leaders from government, clinician-researchers, and advocates who devoted two years to…
閱讀更多臨床試驗的基本知識第 2 部分 – 每個罕見疾病家庭都應該了解什麼
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – What Every Rare Family Should Know,” which was held on October 21st, 2020. Our Caregiver…
閱讀更多臨床試驗的 ABC 第 1 部分 – 基礎知識
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – Get Your Community Prepared,” which was held on September 14th, 2020. This webinar included a…
閱讀更多治愈癲癇第 2 部分
This is a recording of the second webinar in this series—developed in conjunction with the the Epilepsy Leadership Council and the Rare Epilepsy Network—on Curing the Epilepsies, which was held…
閱讀更多Curing the Epilepsies Part 1
This is a recording of the webinar “Curing the Epilepsies: Part 1,” which was held on September 14th, 2020. This is a recording of the first webinar in this series—developed…
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