Posts Tagged ‘research’
增加 DEE 中臨床試驗和新療法的可及性
這是 2024 年 4 月 29 日舉行的網路研討會的錄音。
閱讀更多記錄－針對嚴重受影響人口的預先結果措施
Building a Consortium to Advance Outcome Measures for Severely Affected Populations This is a recording of the second workshop, held November 11th 2021, focused on Building a Consortium to Advance…
閱讀更多記錄－評估現況和機會
ASSESSING STATUS AND OPPORTUNITIES FOR DEVELOPING OUTCOME MEASURES FOR THE MOST SEVERELY AFFECTED POPULATIONS This is a recording of day one of the workshop, held November 4th 2021, and was…
閱讀更多您可以做些什麼來幫助治癒癲癇？
This is a recording of webinar which was held on October 20, 2021. This special session brought together the leaders from government, clinician-researchers, and advocates who devoted two years to…
閱讀更多臨床試驗的基本知識第 2 部分 – 每個罕見疾病家庭都應該了解什麼
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – What Every Rare Family Should Know,” which was held on October 21st, 2020. Our Caregiver…
閱讀更多臨床試驗的 ABC 第 1 部分 – 基礎知識
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – Get Your Community Prepared,” which was held on September 14th, 2020. This webinar included a…
閱讀更多治愈癲癇第 2 部分
This is a recording of the second webinar in this series—developed in conjunction with the the Epilepsy Leadership Council and the Rare Epilepsy Network—on Curing the Epilepsies, which was held…
閱讀更多治愈癲癇第 1 部分
This is a recording of the webinar “Curing the Epilepsies: Part 1,” which was held on September 14th, 2020. This is a recording of the first webinar in this series—developed…
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