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Tools And Resources
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Cure Epilepsy - Resources and Facts
Epilepsy Foundation's SUDEP Institute - to prevent SUDEP and support people bereaved by SUDEP and other epilepsy-related deaths
Danny Did Foundation - resources on devices, prevention of SUDEP and advocacy
Epilepsy Foundation - Information about SUDEP Research
North American SUDEP Registry (NASR) - NASR collects DNA, brain, and other tissues for scientific studies about the causes of SUDEP
Partners Against Mortality in Epilepsy (PAME) - Improving Understanding of and Working to Prevent Epilepsy-related Mortality
Preventing Epilepsy Deaths Toolkit - Child Neurology Foundation
Catalog of AES resources on SUDEP
SUDEP Institute within Epilepsy Foundations
Let’s Talk About Sudden Infant Death in Epilepsy - Online Discussion From Child Neurology Foundation
Articles
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SUDEP: A Global Perspective; Epilepsy & Behavior Journal
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Thanks To Our Sponsors And Contributors
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