Help families get answers, trusted guidance, and a path forward.
We are parents helping parents
When your child has a DEE, getting answers can feel impossible.
DEE-P Connections helps families find trusted resources, expert guidance, and a community that understands the realities of rare and severe epilepsies.
Your gift helps families access free education, webinars, care resources, and support during some of the hardest moments of their lives.
Trusted by families, clinicians, researchers, and 45+ partner organizations worldwide.
Sustained Support
Please consider becoming a monthly donor. Your sustained support helps keep essential resources, family support, and community programs available for those affected by DEEs and NDDs.
Join the movement for sustainable impact. Become a monthly donor today!
Why Help?
Supporting
DEE Families
DEE-P Connections offers families a comprehensive online resource center and access to expert-led webinars, providing essential tools to navigate the challenges of rare & severe epilepsy. We are a free resource for all DEE families.
Uniting 45+
Rare Disease Groups
By partnering with over 45 rare disease organizations, DEE-P Connections has built a cohesive network that bridges knowledge gaps and ensures families benefit from our coordinated efforts.
Home for the Undiagnosed
DEE-P Connections is a home for families of children with severe, undiagnosed epilepsy, providing a supportive community, expert guidance, and a path toward answers and empowerment.
Research &
دفاع
DEE-P Connections advances rare epilepsy care through groundbreaking research, legislative advocacy, scientific publications, and partnerships with 55+ research institutions, including impactful family-centered studies.
We are a GuideStar Platinum Certified Charity
Learn how we’ve earned GuideStar’s highest rating Platinum—THREE CONSECUTIVE YEARS!
Tax Information:
DEE-P Connections is a 501(c)(3) tax-exempt organization (Federal Tax ID 47-1822559) and operates as a DBA of Decoding Developmental Epilepsies (formerly Wishes for Elliott). Your donation is 100% tax-deductible in accordance with U.S. law. Retain the email donation receipt for claiming a deduction on your U.S. taxes, which will be sent to you upon the successful completion of your donation.