Join us to learn more about Cortical Visual Impairment (CVI) from both caregivers and a teacher of the visually impaired in the rare epilepsies. You'll hear what CVI is, what…

Rejoignez-nous pour avoir l'occasion de communiquer avec Amelia Seraphia Derr, maman de STXBP1 et travailleuse sociale, et sa mère, Susan Bourgerie, psychologue, qui a animé notre séance la semaine dernière sur…

Preventing Caregiver Burnout: A Workshop on Building Resilience is brought to you by an amazing mother daughter duo - STXBP1 mom and Social Worker, Amelia Seraphia Derr and her mom,…