Join us to learn more about Cortical Visual Impairment (CVI) from both caregivers and a teacher of the visually impaired in the rare epilepsies. You'll hear what CVI is, what…

Únete a nós para ter a oportunidade de conectarte coa nai de STXBP1 e coa traballadora social Amelia Seraphia Derr e coa súa nai, Susan Bourgerie, psicóloga, que dirixiu a nosa sesión a semana pasada sobre...

Preventing Caregiver Burnout: A Workshop on Building Resilience is brought to you by an amazing mother daughter duo - STXBP1 mom and Social Worker, Amelia Seraphia Derr and her mom,…