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 As new treatments move closer to reality, we need better tools to measure meaningful change in our children’s development. Join DEE-P Connections and The Inchstone Project to learn about Parents Speak 2 — a caregiver-powered survey helping improve outcome measures. Your voice is essential to advancing clinical trial readiness. |
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 Join Shannon and Colleen for our next DEE-P Chat — a relaxed, connection-centered space for caregivers of children impacted by DEEs. We’ll spend time getting to know one another through brief introductions, sharing about our children, and reflecting on our current highs and lows. Sometimes what we need most isn’t another presentation — it’s community.… |
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