Færslur merktar 'medical'
Parent Perspectives: Insights into Medical Decision-Making
Making major decisions about interventions such as feeding tubes or tracheostomies is one of the greatest responsibilities caregivers face for their child, weighing not only risks and benefits but also…
Lestu meiraHvað erum við að læra um COVID-19 bóluefni og sýkingar hjá þeim sem eru með sjaldgæfa flogaveiki?
This is a recording of the webinar, “What are we learning about COVID-19 vaccines and infections in those with rare epilepsies?”, which was held on July 21st, 2022. Are you…
Lestu meiraSudden Unexpected Death in Epilepsy (SUDEP) Part 2: Hvað getum við gert?
There are a number of efforts underway to improve communication about and prevention of SUDEP. This webinar explores how some advocates are working to improve communication with families about SUDEP…
Lestu meiraTaugaörvandi - Gæti VNS, DBS eða RNS hjálpað?
Have you wondered whether vagus nerve stimulators (VNS) might help reduce the intensity of your child’s seizures? What about a responsive neurostimulator (RNS)? Deep brain stimulator (DBS)? This webinar shares…
Lestu meiraSudden Unexpected Death in Epilepsy (SUDEP) Part 1: Hvað vitum við?
What do we know about SUDEP? What don’t we know? What is the state of the research? This webinar helps answer those questions, and more, with three experts: Sally Schaeffer…
Lestu meiraBjörgunarlyf fyrir DEEs röð – 4. hluti
This webinar was originally broadcast live on August 12, 2020 and featured a review of the first 3 webinars in the Rescue Medications for DEEs series and a panel of…
Lestu meiraSjálfstýrð truflun/Dysautonomia
Does your child suffer from digestive and/or urinary motility problems? Do they suffer from temperature regulation issues? Do they have irregular blood pressure and/or heart rate? When you have ruled…
Lestu meiraBjörgunarlyf fyrir DEEs röð – 3. hluti
This webinar was originally broadcast live on July 22, 2020 and featured a panel of caregivers sharing their experiences utilizing rescue medications for DEEs. This third webinar of the Rescue…
Lestu meiraBjörgunarlyf fyrir DEEs röð – 2. hluti
This webinar, which was originally broadcast live on July 8, 2020, gave a synopsis of recent in-depth interviews with DEE caregivers about their experiences utilizing rescue medications for DEEs and…
Lestu meiraCOVID-19 bóluefni og flogaveiki – Áhersla á DEE íbúa
In conjunction with NIH and our partners at the PCDH19 Alliance, we held this webinar to update DEE families on COVID-19 vaccines and epilepsy. This included updates on the development…
Lestu meira