Posts Tagged ‘medical’
Parent Perspectives: Insights into Medical Decision-Making
Making major decisions about interventions such as feeding tubes or tracheostomies is one of the greatest responsibilities caregivers face for their child, weighing not only risks and benefits but also…
閱讀更多關於罕見癲癇患者的 COVID-19 疫苗和感染，我們了解到了什麼？
This is a recording of the webinar, “What are we learning about COVID-19 vaccines and infections in those with rare epilepsies?”, which was held on July 21st, 2022. Are you…
閱讀更多癲癇意外猝死 (SUDEP) 第 2 部分：我們能做什麼？
There are a number of efforts underway to improve communication about and prevention of SUDEP. This webinar explores how some advocates are working to improve communication with families about SUDEP…
閱讀更多神經刺激器 - VNS、DBS 或 RNS 有幫助嗎？
Have you wondered whether vagus nerve stimulators (VNS) might help reduce the intensity of your child’s seizures? What about a responsive neurostimulator (RNS)? Deep brain stimulator (DBS)? This webinar shares…
閱讀更多癲癇意外猝死 (SUDEP) 第 1 部分：我們知道什麼？
What do we know about SUDEP? What don’t we know? What is the state of the research? This webinar helps answer those questions, and more, with three experts: Sally Schaeffer…
閱讀更多DEE 救援藥物系列 – 第 4 部分
This webinar was originally broadcast live on August 12, 2020 and featured a review of the first 3 webinars in the Rescue Medications for DEEs series and a panel of…
閱讀更多自主神經功能障礙/自主神經功能障礙
Does your child suffer from digestive and/or urinary motility problems? Do they suffer from temperature regulation issues? Do they have irregular blood pressure and/or heart rate? When you have ruled…
閱讀更多DEE 救援藥物系列 – 第 3 部分
This webinar was originally broadcast live on July 22, 2020 and featured a panel of caregivers sharing their experiences utilizing rescue medications for DEEs. This third webinar of the Rescue…
閱讀更多DEE 救援藥物系列 – 第 2 部分
This webinar, which was originally broadcast live on July 8, 2020, gave a synopsis of recent in-depth interviews with DEE caregivers about their experiences utilizing rescue medications for DEEs and…
閱讀更多COVID-19 疫苗和癲癇 – 關注 DEE 人群
In conjunction with NIH and our partners at the PCDH19 Alliance, we held this webinar to update DEE families on COVID-19 vaccines and epilepsy. This included updates on the development…
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