This workshop on on Building Resilience and Preventing Caregiver Burnout was held with an amazing mother daughter duo – STXBP1 mom and Social Worker, Amelia Seraphia Derr and her mom, Susan Bourgerie, a psychologist.

Listen in to gain some useful insights into the mind-body connection and how we can take steps to manage the stress associated with caring for a loved one with a DEE/rare epilepsy.

This workshop is based on the belief in our innate capacity to adapt, recover, and even thrive despite the effects of trauma, stress, and adversity. The Body/Mind/Heart resilience model that will be presented includes, but goes beyond, traditional self-care. The tools and resources included are empirically shown to build and maintain our capacity for resilience, even in the face of the chronic stress and caregiver burnout that are a reality for those caring for medically complex children. This session was held in coordination with our partners at the STXBP1 Foundation.

要了解有關 DEE 家庭的醫療、護理和支持或研究主題的更多信息，請訪問我們的 資源中心.