保護罕見的標籤外治療

保險公司或醫療補助是否拒絕承保關鍵的處方治療，聲稱這些治療超出了適應症並且不是「醫療必需的」？

承保是否因為可能對您或您的孩子有效的治療方法不在藥典（基於證據的標籤外治療方案的彙編）中而被拒絕？

Nearly half of chemotherapy drugs prescribed today are off-label but there is a broad list of drugs that are covered because there was Congressional action. Join forces with other rare disease patients and other families to learn simple ways YOU can encourage Congressional action to make sure insurers and other payers can no longer deny coverage of needed off-label treatments for rare and ultra-rare disorders.

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