Nglindhungi Akses Langka kanggo Perawatan Off-Label

Apa perusahaan asuransi utawa Medicaid ora gelem nutupi perawatan sing diwènèhaké kritis sing ngaku ora ana label lan ora "perlu medis"?

Apa jangkoan ditolak amarga perawatan sing bisa digunakake kanggo sampeyan utawa anak sampeyan ora ana ing compendia - kompilasi pilihan perawatan sing ora ana label sing adhedhasar bukti?

Nearly half of chemotherapy drugs prescribed today are off-label but there is a broad list of drugs that are covered because there was Congressional action. Join forces with other rare disease patients and other families to learn simple ways YOU can encourage Congressional action to make sure insurers and other payers can no longer deny coverage of needed off-label treatments for rare and ultra-rare disorders.

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