Articles étiquettés ‘medical’
Série Médicaments de secours pour les DEE – Partie 1
This webinar was originally broadcast live on June 12, 2020. We heard from a caregiver about her experience navigating and using rescue medications for DEEs and from two leading professionals…
Lire la suiteAméliorer la qualité des soins dans l'épilepsie infantile rare
This quality of care webinar was moderated by Gabrielle Conecker, mother to Elliott who has SCN8A-related epilepsy and severe DEE, and is Co-Founder of Wishes for Elliott and DEE-P Connections.…
Lire la suiteNaviguer en matière de sécurité pour les patients pédiatriques épileptiques dans l’environnement COVID-19
This webinar—planned in coordination with The Epilepsy Foundation of America—shared front-line experiences and updates on COVID-19 in severe pediatric epilepsy patients from three Boston Children’s Hospital Division of Epilepsy &…
Lire la suiteProtéger les enfants épileptiques médicalement complexes et/ou immunodéprimés contre le COVID-19
This session was moderated by Heidi Grabenstatter – Science Director for IFCR and the panelists for this webinar were: Dr. Anastassios Koumbourlis – Division Chief, Pulmonary & Sleep Medicine &…
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