يازمىلار خەتكۈچ 'medical'
DEEs يۈرۈشلۈك قۇتقۇزۇش قۇتقۇزۇش دورىلىرى - 1-قىسىم
This webinar was originally broadcast live on June 12, 2020. We heard from a caregiver about her experience navigating and using rescue medications for DEEs and from two leading professionals…
تېخىمۇ كۆپ ئوقۇڭئاز ئۇچرايدىغان بالىلار تۇتقاقلىق كېسىلىنىڭ داۋالاش سۈپىتىنى يۇقىرى كۆتۈرۈش
This quality of care webinar was moderated by Gabrielle Conecker, mother to Elliott who has SCN8A-related epilepsy and severe DEE, and is Co-Founder of Wishes for Elliott and DEE-P Connections.…
تېخىمۇ كۆپ ئوقۇڭCOVID-19 مۇھىتىدىكى بالىلار تۇتقاقلىق بىمارلىرىنىڭ يول باشلاش بىخەتەرلىكى
This webinar—planned in coordination with The Epilepsy Foundation of America—shared front-line experiences and updates on COVID-19 in severe pediatric epilepsy patients from three Boston Children’s Hospital Division of Epilepsy &…
تېخىمۇ كۆپ ئوقۇڭتېببىي مۇرەككەپ ۋە ياكى ئىممۇنىتېت كۈچى ئاجىز بالىلارنى تۇتقاقلىق كېسىلىگە گىرىپتار بولغان بالىلارنى COVID-19 دىن قوغداش
This session was moderated by Heidi Grabenstatter – Science Director for IFCR and the panelists for this webinar were: Dr. Anastassios Koumbourlis – Division Chief, Pulmonary & Sleep Medicine &…
تېخىمۇ كۆپ ئوقۇڭ