Příspěvky označené jako ‘medical’
Rescue Medications for DEEs Series – Part 1
This webinar was originally broadcast live on June 12, 2020. We heard from a caregiver about her experience navigating and using rescue medications for DEEs and from two leading professionals…
Číst dáleZlepšení kvality péče o vzácnou dětskou epilepsii
This quality of care webinar was moderated by Gabrielle Conecker, mother to Elliott who has SCN8A-related epilepsy and severe DEE, and is Co-Founder of Wishes for Elliott and DEE-P Connections.…
Číst dáleBezpečnost navigace pro pacienty s dětskou epilepsií v prostředí COVID-19
This webinar—planned in coordination with The Epilepsy Foundation of America—shared front-line experiences and updates on COVID-19 in severe pediatric epilepsy patients from three Boston Children’s Hospital Division of Epilepsy &…
Číst dáleOchrana zdravotně složitých a/nebo imunosuprimovaných dětí s epilepsií před COVID-19
This session was moderated by Heidi Grabenstatter – Science Director for IFCR and the panelists for this webinar were: Dr. Anastassios Koumbourlis – Division Chief, Pulmonary & Sleep Medicine &…
Číst dále