Posts by Gabi Conecker
Melindungi Akses Jarang kepada Rawatan Luar Label
This webinar was recorded on May 22nd, 2023. Have insurance companies or Medicaid refused to cover critical prescribed treatments claiming they were off-label and not “medically necessary”? Is coverage denied…
Baca LagiKetahui Cara Memaksimumkan Data Anda dengan CRID
This webinar was recorded on April 28th, 2023. Watch to learn more about the Clinical Research ID (aka The CRID™), a service that enables patients and parents (and their child/children)…
Baca LagiIsu GI dan Gangguan Neurodevelopmental
This webinar was recorded on February 13th, 2023. In this webinar, hear about GI issues such as reflux, feeding tubes, constipation, and more! Speakers: Russ Zwiener, pediatric GI doctor and KdVS…
Baca LagiPembedahan Epilepsi dan Epilepsi Genetik Jarang
Are you curious about when and why you should consider epilepsy surgery for your child with a rare genetic epilepsy or DEE? Our guests are: Dr. Ahmad Marashly, Medical Director,…
Baca LagiDiet Ketogenik dan DEE
DEE-P co-hosted this in partnership with the KCNT1 Epilepsy Foundation on October 17, 2022. Find out how the ketogenic diet works with the DEEs from Ketogenic Diet Program Director and…
Baca LagiKesihatan dan Kebersihan Mulut bagi Mereka yang Tidak Makan melalui Mulut
DEE-P co-hosted this in partnership with the KCNT1 Epilepsy Foundation on September 16, 2022. Our guests were: Shannon Daly Weir, a KCNT1 mom and dental hygienist, is working toward her…
Baca LagiKembali Ke Sekolah SAP
Aug 24th at 1pm ET Back to school time means it’s time to update your child’s seizure action plan (SAP)! Make sure that those who care for your child know…
Baca LagiApakah yang kita pelajari tentang vaksin COVID-19 dan jangkitan pada mereka yang mempunyai epilepsi yang jarang berlaku?
This is a recording of the webinar, “What are we learning about COVID-19 vaccines and infections in those with rare epilepsies?”, which was held on July 21st, 2022. Are you…
Baca LagiPlanificación SAP de verano: lo que necesita saber y hacer for estar preparado
“Planificación SAP de verano: lo que necesita saber y hacer para estar preparado” con Dr. Rebecca Garcia-Sosa En Español! Con el verano llegan cambios en la rutina, nuevos cuidadores y nuevos entornos.…
Baca LagiPerancangan Tindakan Rampas Musim Panas – Perkara yang anda perlu tahu dan lakukan untuk bersedia
Our “Summer Seizure Action Planning – What you need to know and do to be prepared” webinar with pediatric neurologist, Dr. Inna Hughes, was recorded on June 29, 2022. With…
Baca Lagi