Posts by Gabi Conecker
Protexer o acceso raro a tratamentos fóra de etiqueta
This webinar was recorded on May 22nd, 2023. Have insurance companies or Medicaid refused to cover critical prescribed treatments claiming they were off-label and not “medically necessary”? Is coverage denied…
Le máisAprende a maximizar os teus datos co CRID
This webinar was recorded on April 28th, 2023. Watch to learn more about the Clinical Research ID (aka The CRID™), a service that enables patients and parents (and their child/children)…
Le máisProblemas gastrointestinais e trastornos do neurodesenvolvemento
This webinar was recorded on February 13th, 2023. In this webinar, hear about GI issues such as reflux, feeding tubes, constipation, and more! Speakers: Russ Zwiener, pediatric GI doctor and KdVS…
Le máisCirurxía da epilepsia e epilepsias xenéticas raras
Are you curious about when and why you should consider epilepsy surgery for your child with a rare genetic epilepsy or DEE? Our guests are: Dr. Ahmad Marashly, Medical Director,…
Le máisDieta Cetoxénica e os DEE
DEE-P co-hosted this in partnership with the KCNT1 Epilepsy Foundation on October 17, 2022. Find out how the ketogenic diet works with the DEEs from Ketogenic Diet Program Director and…
Le máisOral Health and Hygiene for Those Who Do Not Eat by Mouth
DEE-P co-hosted this in partnership with the KCNT1 Epilepsy Foundation on September 16, 2022. Our guests were: Shannon Daly Weir, a KCNT1 mom and dental hygienist, is working toward her…
Le máisRegreso á escola SAP
Aug 24th at 1pm ET Back to school time means it’s time to update your child’s seizure action plan (SAP)! Make sure that those who care for your child know…
Le máisQue estamos aprendendo sobre as vacinas e infeccións contra a COVID-19 en persoas con epilepsias raras?
This is a recording of the webinar, “What are we learning about COVID-19 vaccines and infections in those with rare epilepsies?”, which was held on July 21st, 2022. Are you…
Le máisPlanificación SAP de verán: o que necesita saber e facer para estar preparado
“Planificación SAP de verano: lo que necesita saber y hacer para estar preparado” con Dr. Rebecca Garcia-Sosa En Español! Con el verano llegan cambios en la rutina, nuevos cuidadores y nuevos entornos.…
Le máisPlanificación de accións contra as convulsións de verán: o que necesitas saber e facer para estar preparado
Our “Summer Seizure Action Planning – What you need to know and do to be prepared” webinar with pediatric neurologist, Dr. Inna Hughes, was recorded on June 29, 2022. With…
Le máis