In this conversation, you will meet Blyth Lord – mom to Cameron who had a genetic disorder and passed away at the age of 2. She is the Founder of Courageous Parents Network as well as an incredible new resource – NeuroJourney, which guides families of children with severe neurological impairments (SNI) through the many stages we must confront when caring for our children. NeuroJourney is a comprehensive tool built with both caregivers and professionals, to help families navigate the evolving needs of our child as well as the complex decisions that we may have to face.

This is a conversation between Blyth, DEE-P Connections Co-Founder and DEE mom, Gabi Conecker and Chrissy Salley – a Pediatric Psychologist working with the Courageous Parents Network and NeuroJourney.

To learn more about medical, care and support or research topics for DEE families, visit our Centro de recursos.