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Welcome,
DEE-P Families!

Find Your Path To Answers Here.

Pesquise no Centro de Recursos

Recent Webinars & Videos

Developmental And Epileptic Encephalopathies

Morte Súbita Inesperada na Epilepsia (SUDEP) Parte 2: O que podemos fazer?

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Estimuladores nervosos – um VNS, DBS ou RNS poderia ajudar?

Researching

The ABCs of Clinical Trials Part 2 – What Every Rare Disease Family Should Know

gentic modifiers

The ABC’s of Clinical Trials Part 1 – The Basics

DEE-P connections 2025 sponsors include Praxis, Neurocrine, and Longboard.

A Note About Site Information

Fully populating each topic with carefully curated resources is a work in progress. The most complete resource pages are in the topic areas of our completed webinars, where we have brought leading national experts to lay out the most currently available relevant information with specific focus on the rare epilepsies. Each resource page will have a consistent structure organizing information on (1) webinars, (2), slides and webinar handouts, (3) tools and guidance, and (4) research studies. The drop down menu shows all topics for which we plan to develop a resource page, but ones for which no content has been developed will be faded and not have an active link.
 
We welcome your input and suggestions. Are there topics of interest to you and your community which are not reflected in our itemized topics? Would you or your community like to recommend relevant resources on any topics for inclusion on this site which you believe can be of value for families with a different DEE/ diagnosis? Please write us at gabi@wishesforelliott.com with your feedback, input or recommendations. 
 

 

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