Postări de Gabi Conecker
Rescue Medications for DEEs Series – Part 2
This webinar, which was originally broadcast live on July 8, 2020, gave a synopsis of recent in-depth interviews with DEE caregivers about their experiences utilizing rescue medications for DEEs and…
Citeşte mai multCOVID-19 Vaccines and Epilepsy – Focus on DEE Population
In conjunction with NIH and our partners at the PCDH19 Alliance, we held this webinar to update DEE families on COVID-19 vaccines and epilepsy. This included updates on the development…
Citeşte mai multSeria de medicamente de salvare pentru DEE - Partea 1
This webinar was originally broadcast live on June 12, 2020. We heard from a caregiver about her experience navigating and using rescue medications for DEEs and from two leading professionals…
Citeşte mai multPromovarea relațiilor sănătoase între cei cu epilepsie severă și frații lor
Have you struggled with how to manage the relationships between your medically complex children and their more typically developing siblings? Are you a sibling to someone with severe epilepsy and…
Citeşte mai multÎmbunătățirea calității îngrijirii în epilepsia rară a copilăriei
This quality of care webinar was moderated by Gabrielle Conecker, mother to Elliott who has SCN8A-related epilepsy and severe DEE, and is Co-Founder of Wishes for Elliott and DEE-P Connections.…
Citeşte mai multStrategii pentru a învăța acasă cu copilul DEE și pentru a implica întreaga familie
This is a recording of the DEE-P Connections webinar from May 13, 2020 “Strategies for Fun and Learning at Home for Kids with DEEs and the Whole Family” which explored…
Citeşte mai multNavigarea siguranței pentru pacienții cu epilepsie pediatrică în mediul COVID-19
This webinar—planned in coordination with The Epilepsy Foundation of America—shared front-line experiences and updates on COVID-19 in severe pediatric epilepsy patients from three Boston Children’s Hospital Division of Epilepsy &…
Citeşte mai multCOVID -19 prin prisma durerii
DEE-P Connections planned this webinar in coordination with The Wendt Center for Loss and Healing. This is a recording of the webinar originally broadcasted on April 14, 2020. The webinar…
Citeşte mai multGenetica DEE
This webinar was planned in coordination with Invitae and Children’s Hospital Colorado. The webinar was originally held on April 29, 2020. This webinar on the genetics of DEEs includes information…
Citeşte mai multProtejarea copiilor cu epilepsie complexi din punct de vedere medical și/sau cu imunodeprimare de COVID-19
This session was moderated by Heidi Grabenstatter – Science Director for IFCR and the panelists for this webinar were: Dr. Anastassios Koumbourlis – Division Chief, Pulmonary & Sleep Medicine &…
Citeşte mai mult