Video
அரிதான கால்-கை வலிப்பு நோய்க்குறி: ESES, CSWS, EECSWS?
This webinar was broadcast live on June 10, 2021. Rare within rare – ESES Electrical status epilepticus during slow-wave sleep (ESES), also known as continuous spike-wave of slow sleep (CSWS)…
மேலும் படிக்கBe Prepared – Guiding You Through the Journey of Planning for a Secure Future for your DEE Child
This introductory webinar shares an overview of the planning necessary for special needs parents to ensure that their children are as comfortable and secure as they (and you!) age. Please…
மேலும் படிக்கSeizure Action Plan Awareness
Anyone with seizures should have one… The week of February 8-14, 2021 is the first Seizure Action Plan Awareness Week (SAPAW) to be held annually (starting on the second Monday…
மேலும் படிக்ககால்-கை வலிப்பில் திடீர் எதிர்பாராத மரணம் (SUDEP) பகுதி 2: நாம் என்ன செய்யலாம்?
There are a number of efforts underway to improve communication about and prevention of SUDEP. This webinar explores how some advocates are working to improve communication with families about SUDEP…
மேலும் படிக்கNerve Stimulators- Could a VNS, DBS, or RNS Help?
Have you wondered whether vagus nerve stimulators (VNS) might help reduce the intensity of your child’s seizures? What about a responsive neurostimulator (RNS)? Deep brain stimulator (DBS)? This webinar shares…
மேலும் படிக்கமருத்துவ பரிசோதனைகளின் ஏபிசிகள் பகுதி 2 - ஒவ்வொரு அரிய நோய் குடும்பமும் தெரிந்து கொள்ள வேண்டியது
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – What Every Rare Family Should Know,” which was held on October 21st, 2020. Our Caregiver…
மேலும் படிக்கஏபிசியின் மருத்துவ சோதனைகள் பகுதி 1 – அடிப்படைகள்
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – Get Your Community Prepared,” which was held on September 14th, 2020. This webinar included a…
மேலும் படிக்ககால்-கை வலிப்பில் திடீர் எதிர்பாராத மரணம் (SUDEP) பகுதி 1: நமக்கு என்ன தெரியும்?
What do we know about SUDEP? What don’t we know? What is the state of the research? This webinar helps answer those questions, and more, with three experts: Sally Schaeffer…
மேலும் படிக்கCuring the Epilepsies Part 2
This is a recording of the second webinar in this series—developed in conjunction with the the Epilepsy Leadership Council and the Rare Epilepsy Network—on Curing the Epilepsies, which was held…
மேலும் படிக்கCuring the Epilepsies Part 1
This is a recording of the webinar “Curing the Epilepsies: Part 1,” which was held on September 14th, 2020. This is a recording of the first webinar in this series—developed…
மேலும் படிக்க