Video
Sindrom de epilepsie rar: ESES, CSWS, EECSWS?
This webinar was broadcast live on June 10, 2021. Rare within rare – ESES Electrical status epilepticus during slow-wave sleep (ESES), also known as continuous spike-wave of slow sleep (CSWS)…
Citeşte mai multFii pregătit – îndrumându-te prin călătoria de planificare pentru un viitor sigur pentru copilul tău DEE
This introductory webinar shares an overview of the planning necessary for special needs parents to ensure that their children are as comfortable and secure as they (and you!) age. Please…
Citeşte mai multConștientizarea planului de acțiune pentru sechestru
Anyone with seizures should have one… The week of February 8-14, 2021 is the first Seizure Action Plan Awareness Week (SAPAW) to be held annually (starting on the second Monday…
Citeşte mai multSudden Unexpected Death in Epilepsy (SUDEP) Part 2: What can we do?
There are a number of efforts underway to improve communication about and prevention of SUDEP. This webinar explores how some advocates are working to improve communication with families about SUDEP…
Citeşte mai multStimulatori nervoși – Ar putea un VNS, DBS sau RNS să ajute?
Have you wondered whether vagus nerve stimulators (VNS) might help reduce the intensity of your child’s seizures? What about a responsive neurostimulator (RNS)? Deep brain stimulator (DBS)? This webinar shares…
Citeşte mai multABC-ul studiilor clinice Partea 2 – Ce ar trebui să știe orice familie cu boli rare
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – What Every Rare Family Should Know,” which was held on October 21st, 2020. Our Caregiver…
Citeşte mai multABC-ul studiilor clinice Partea 1 – Bazele
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – Get Your Community Prepared,” which was held on September 14th, 2020. This webinar included a…
Citeşte mai multMoarte subită neașteptată în epilepsie (SUDEP) Partea 1: Ce știm?
What do we know about SUDEP? What don’t we know? What is the state of the research? This webinar helps answer those questions, and more, with three experts: Sally Schaeffer…
Citeşte mai multVindecarea epilepsiilor Partea 2
This is a recording of the second webinar in this series—developed in conjunction with the the Epilepsy Leadership Council and the Rare Epilepsy Network—on Curing the Epilepsies, which was held…
Citeşte mai multVindecarea epilepsiilor Partea 1
This is a recording of the webinar “Curing the Epilepsies: Part 1,” which was held on September 14th, 2020. This is a recording of the first webinar in this series—developed…
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