Video
Mjög sjaldgæft flogaveikiheilkenni: ESES, CSWS, EECSWS?
This webinar was broadcast live on June 10, 2021. Rare within rare – ESES Electrical status epilepticus during slow-wave sleep (ESES), also known as continuous spike-wave of slow sleep (CSWS)…
Lestu meiraVertu viðbúinn - Leiðbeindu þér í gegnum ferðalagið til að skipuleggja örugga framtíð fyrir DEE barnið þitt
This introductory webinar shares an overview of the planning necessary for special needs parents to ensure that their children are as comfortable and secure as they (and you!) age. Please…
Lestu meiraMeðvitund um aðgerðaáætlun um krampa
Anyone with seizures should have one… The week of February 8-14, 2021 is the first Seizure Action Plan Awareness Week (SAPAW) to be held annually (starting on the second Monday…
Lestu meiraSudden Unexpected Death in Epilepsy (SUDEP) Part 2: Hvað getum við gert?
There are a number of efforts underway to improve communication about and prevention of SUDEP. This webinar explores how some advocates are working to improve communication with families about SUDEP…
Lestu meiraTaugaörvandi - Gæti VNS, DBS eða RNS hjálpað?
Have you wondered whether vagus nerve stimulators (VNS) might help reduce the intensity of your child’s seizures? What about a responsive neurostimulator (RNS)? Deep brain stimulator (DBS)? This webinar shares…
Lestu meiraABCs klínískra rannsókna Part 2 - Það sem sérhver sjaldgæfur sjúkdómsfjölskylda ætti að vita
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – What Every Rare Family Should Know,” which was held on October 21st, 2020. Our Caregiver…
Lestu meiraABC's of Clinical Trials Part 1 - Grunnatriðin
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – Get Your Community Prepared,” which was held on September 14th, 2020. This webinar included a…
Lestu meiraSudden Unexpected Death in Epilepsy (SUDEP) Part 1: Hvað vitum við?
What do we know about SUDEP? What don’t we know? What is the state of the research? This webinar helps answer those questions, and more, with three experts: Sally Schaeffer…
Lestu meiraAð lækna flogaveiki hluti 2
This is a recording of the second webinar in this series—developed in conjunction with the the Epilepsy Leadership Council and the Rare Epilepsy Network—on Curing the Epilepsies, which was held…
Lestu meiraAð lækna flogaveiki hluti 1
This is a recording of the webinar “Curing the Epilepsies: Part 1,” which was held on September 14th, 2020. This is a recording of the first webinar in this series—developed…
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