Video
Сирәк эпилепсия синдромы: ESES, CSWS, EECSWS?
This webinar was broadcast live on June 10, 2021. Rare within rare – ESES Electrical status epilepticus during slow-wave sleep (ESES), also known as continuous spike-wave of slow sleep (CSWS)…
Күбрәк укыӘзер булыгыз - сезнең DEE Балагыз өчен куркынычсыз киләчәкне планлаштыру сәяхәте белән җитәкчелек итү
This introductory webinar shares an overview of the planning necessary for special needs parents to ensure that their children are as comfortable and secure as they (and you!) age. Please…
Күбрәк укыСаклау чаралар планы турында хәбәрдарлык
Anyone with seizures should have one… The week of February 8-14, 2021 is the first Seizure Action Plan Awareness Week (SAPAW) to be held annually (starting on the second Monday…
Күбрәк укыЭпилепсиядә көтелмәгән үлем (SUDEP) 2 өлеш: Без нәрсә эшли алабыз?
There are a number of efforts underway to improve communication about and prevention of SUDEP. This webinar explores how some advocates are working to improve communication with families about SUDEP…
Күбрәк укыНерв стимуляторлары - VNS, DBS яки RNS ярдәм итә аламы?
Have you wondered whether vagus nerve stimulators (VNS) might help reduce the intensity of your child’s seizures? What about a responsive neurostimulator (RNS)? Deep brain stimulator (DBS)? This webinar shares…
Күбрәк укыКлиник сынауларның АБСлары 2 өлеш - Everyәрбер сирәк авыру гаиләсе нәрсә белергә тиеш
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – What Every Rare Family Should Know,” which was held on October 21st, 2020. Our Caregiver…
Күбрәк укыABC клиник сынаулар 1 өлеш - нигезләр
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – Get Your Community Prepared,” which was held on September 14th, 2020. This webinar included a…
Күбрәк укыЭпилепсиядә көтелмәгән үлем (SUDEP) 1 өлеш: Без нәрсә беләбез?
What do we know about SUDEP? What don’t we know? What is the state of the research? This webinar helps answer those questions, and more, with three experts: Sally Schaeffer…
Күбрәк укыЭпилепсияне дәвалау 2 өлеш
This is a recording of the second webinar in this series—developed in conjunction with the the Epilepsy Leadership Council and the Rare Epilepsy Network—on Curing the Epilepsies, which was held…
Күбрәк укыЭпилепсияне дәвалау 1 өлеш
This is a recording of the webinar “Curing the Epilepsies: Part 1,” which was held on September 14th, 2020. This is a recording of the first webinar in this series—developed…
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