Ensayos clínicos
Understanding ASOs & Informed Consent
Navigating emerging treatment options can feel overwhelming, especially when families are asked to make decisions about experimental or individualized therapies. In this educational webinar, DEEP and KCNT1 Epilepsy explore the…
Leer másAumento del acceso a ensayos clínicos y nuevos tratamientos en las EDE
This is a recording of the webinar held on April 29, 2024. This is a conversation about a promising clinical trial model for new epilepsy treatments that accelerates access to…
Leer másEl ABC de los ensayos clínicos, parte 2: lo que toda familia de enfermedades raras debe saber
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – What Every Rare Family Should Know,” which was held on October 21st, 2020. Our Caregiver…
Leer másEl ABC de los ensayos clínicos, parte 1: conceptos básicos
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – Get Your Community Prepared,” which was held on September 14th, 2020. This webinar included a…
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