Ceribandinên Klînîkî
Understanding ASOs & Informed Consent
Navigating emerging treatment options can feel overwhelming, especially when families are asked to make decisions about experimental or individualized therapies. In this educational webinar, DEEP and KCNT1 Epilepsy explore the…
Read MoreZêdekirina gihîştina ceribandinên klînîkî û dermankirinên nû li seranserê DEEs
Ev tomarek webinar e ku di 29ê Avrêl, 2024-an de hatî çêkirin. Ev axaftinek li ser modelek ceribandina klînîkî ya sozdar e ji bo dermankirinên nû yên epîlepsiyê ku gihîştina bi lez dike…
Read MoreThe ABCs of Clinical Trials Part 2 – What Every Rare Disease Family Should Know
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – What Every Rare Family Should Know,” which was held on October 21st, 2020. Our Caregiver…
Read MoreThe ABC’s of Clinical Trials Part 1 – The Basics
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – Get Your Community Prepared,” which was held on September 14th, 2020. This webinar included a…
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