臨床試驗
Understanding ASOs & Informed Consent
Navigating emerging treatment options can feel overwhelming, especially when families are asked to make decisions about experimental or individualized therapies. In this educational webinar, DEEP and KCNT1 Epilepsy explore the…
閱讀更多增加 DEE 中臨床試驗和新療法的可及性
這是 2024 年 4 月 29 日舉行的網路研討會的錄音。
閱讀更多臨床試驗的基本知識第 2 部分 – 每個罕見疾病家庭都應該了解什麼
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – What Every Rare Family Should Know,” which was held on October 21st, 2020. Our Caregiver…
閱讀更多臨床試驗的 ABC 第 1 部分 – 基礎知識
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – Get Your Community Prepared,” which was held on September 14th, 2020. This webinar included a…
閱讀更多