Kliniske studier
Understanding ASOs & Informed Consent
Navigating emerging treatment options can feel overwhelming, especially when families are asked to make decisions about experimental or individualized therapies. In this educational webinar, DEEP and KCNT1 Epilepsy explore the…
Les merØke tilgangen til kliniske studier og nye behandlinger på tvers av DEE-ene
Dette er et opptak av webinaret holdt 29. april 2024. Dette er en samtale om en lovende klinisk utprøvingsmodell for nye epilepsibehandlinger som akselererer tilgangen til...
Les merABCs of Clinical Trials del 2 - Hva enhver familie med sjeldne sykdommer bør vite
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – What Every Rare Family Should Know,” which was held on October 21st, 2020. Our Caregiver…
Les merABC's of Clinical Trials del 1 – Grunnleggende
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – Get Your Community Prepared,” which was held on September 14th, 2020. This webinar included a…
Les mer