Ensaios clínicos
Understanding ASOs & Informed Consent
Navigating emerging treatment options can feel overwhelming, especially when families are asked to make decisions about experimental or individualized therapies. In this educational webinar, DEEP and KCNT1 Epilepsy explore the…
Le máisAumento do acceso aos ensaios clínicos e aos novos tratamentos nos DEE
Esta é unha gravación do seminario web celebrado o 29 de abril de 2024. Esta é unha conversación sobre un modelo de ensaio clínico prometedor para novos tratamentos para a epilepsia que acelera o acceso a...
Le máisO ABC dos ensaios clínicos Parte 2: o que debe saber toda familia de enfermidades raras
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – What Every Rare Family Should Know,” which was held on October 21st, 2020. Our Caregiver…
Le máisO ABC dos ensaios clínicos, parte 1: conceptos básicos
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – Get Your Community Prepared,” which was held on September 14th, 2020. This webinar included a…
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