Testes clínicos
Understanding ASOs & Informed Consent
Navigating emerging treatment options can feel overwhelming, especially when families are asked to make decisions about experimental or individualized therapies. In this educational webinar, DEEP and KCNT1 Epilepsy explore the…
Leia MaisAumentando o acesso a ensaios clínicos e novos tratamentos nos DEEs
Esta é uma gravação do webinar realizado em 29 de abril de 2024. Esta é uma conversa sobre um modelo de ensaio clínico promissor para novos tratamentos para epilepsia que acelera o acesso a…
Leia MaisThe ABCs of Clinical Trials Part 2 – What Every Rare Disease Family Should Know
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – What Every Rare Family Should Know,” which was held on October 21st, 2020. Our Caregiver…
Leia MaisThe ABC’s of Clinical Trials Part 1 – The Basics
This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – Get Your Community Prepared,” which was held on September 14th, 2020. This webinar included a…
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