বিষয়বস্তুলৈ যাওক

ইভেন্ট

ইভেন্ট সন্ধান আৰু দৰ্শন নেভিগেচন

কাৰ্যক্ৰম দৰ্শন নেভিগেচন

আজি

  • DEE-P Discussion: CVI and the DEEs

    Join us for a conversation with caregivers about cortical visual impairment - diagnosis, therapies, adaptations and what life is like with CVI. Our guests will be DEE caregivers of children living with CVI: Anne Thompson Heller Stephanie Kung Madeleine Oudin Rachel Gaddis

  • A Gift for Future Generations – Brain Donation: What to Consider and How it Works

    In this important discussion with rare epilepsy moms who made the decision to donate theirs children's brain tissue upon death, we will discuss a number of critical elements about this deeply personal and difficult decision including: 1. How and why they made the decision to donate2. How to manage family members who don't understand or…

  • The Inchstone Project Community Update – Spring 2024

    Please join The Inchstone Project Research Team for an update on the progress of our efforts to create a range of assessment tools that can accurately measure progress in our…

  • Traveling with your medically complex child

    In this extended discussion, we will hear from a group of DEE moms about how they manage and plan for adventures and travel with their medically complex children - both nationally and internationally. Hear all about packing, planning, meds, supplies, special equipment and more. Ask your questions of these seasoned mom travelers and learn their…

  • Sleep & DEEs

    Join us as we discuss sleep issues within the DEE and rare epilepsies community.

  • How to Get Grants and Funding for Medical Expenses

    DEE-P Connections, in association with DYNC1H1 Association, is excited to welcome Advocacy Abby, who will assist families with medically complex children in navigating the complexities of grants and other funding sources.

  • ALL ABOUT The Connected Parent

    Join us and the founder of The Connected Parent, Julie Walters. The Connected Parent is like Yelp, but for families that have kids with disabilities!

  • Surviving the Holidays – A DEE-P Chat

    Join us as we chat about navigating the holidays with our medically complex kids. From finding the perfect gifts, making memories, or spending time in the hospital we plan to talk about it ALL. We hope that everyone leaves feeling encouraged and knowing they aren't allow during this holiday season.

  • DEE-P Fundraising Workshop

    Want support to start your GivingTuesday campaign? Join us for one of our 30 minute GivingTuesday Workshops. We’ll guide you through the setup process, provide campaign tips, and answer any questions.