Posts by Charles
Sleep & DEEs
Listen in as as we discuss sleep issues within the DEE and rare epilepsies community.
Read MoreAre we giving sleep enough attention?
Written By Anne Thompson Heller, mom to 3yr old Jordan who lives with DEEs. How many of our kids experience sleep challenges? From what I gather – many of them!…
Read MoreTraveling with Your Medically Complex Child
This webinar is packed with great information, strategies, and tactics for traveling with a medically complex child.
Read MoreCortical Visual Impairment (CVI) and the Developmental and Epileptic Encephalopathies (DEEs)
In this webinar, you will learn more about what Cortical Visual Impairment (CVI) is, what things looks like to someone with CVI and how to manage care and adapt for…
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