Inchstone Community Update Webinar
February 27, 2023 @ 5:00 pm – 6:00 pm
The tools that are currently being used to measure the progress of people with developmental and epileptic encephalopathies (DEEs) are not able to capture their small improvements, which could jeopardize trials of new disease-altering treatments. The goal of the Inchstone Project is to identify and develop measures that are sensitive to the small but important changes (inchstones) that many at the severely affected end of the DEE spectrum may have in response to new therapies. Join us at our community update meeting to learn more about our past and upcoming research efforts and to learn how you can get involved!