Your DEE-P Experiences

Help Make DEE-P Connections


The DEE-Project mission is to provide support to families who have loved ones severely affected by DEEs. Our activities focus on providing relevant webinars and an online consolidated resource center.

Our journeys are intense and there are many other families out there who, on a daily basis, are having experiences or challenges similar to you. We are asking for you to share your experiences with DEE-P webinars and our Resource Center so we can spread the word and extend our reach.

Please provide a photo of your loved one with a DEE along with your comments! The higher quality the photo, the better.

By sending us stories or photos, you consent to our publishing them on this site.

You can submit your DEE-P experiences by clicking the button below. Thank you!