Að taka þátt í rannsóknum
Ógreindur
Þessi DEE-P umræðu var tekin upp 13. september 2023. Í þessari DEE-P umræðu kannum við reynsluna af því að eignast barn með ógreindan sjaldgæfan flogaveikiröskun. Við ræðum mismunandi…
Lestu meiraHvað getur ÞÚ gert til að lækna flogaveiki?
This is a recording of webinar which was held on October 20, 2021. This special session brought together the leaders from government, clinician-researchers, and advocates who devoted two years to…
Lestu meiraAð bæta gæði umönnunar við sjaldgæfa flogaveiki barna
This quality of care webinar was moderated by Gabrielle Conecker, mother to Elliott who has SCN8A-related epilepsy and severe DEE, and is Co-Founder of Wishes for Elliott and DEE-P Connections.…
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