Deltar i forskning
Udiagnostisert
Denne DEE-P-diskusjonen ble tatt opp 13. september 2023. Under denne DEE-P-diskusjonen utforsker vi opplevelsen av å ha et barn med en udiagnostisert sjelden epilepsilidelse. Vi diskuterer forskjellige…
Les merHva kan DU gjøre for å kurere epilepsiene?
This is a recording of webinar which was held on October 20, 2021. This special session brought together the leaders from government, clinician-researchers, and advocates who devoted two years to…
Les merForbedring av omsorgskvaliteten ved sjelden barneepilepsi
This quality of care webinar was moderated by Gabrielle Conecker, mother to Elliott who has SCN8A-related epilepsy and severe DEE, and is Co-Founder of Wishes for Elliott and DEE-P Connections.…
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