參與研究
未確診
本次 DEE-P 討論錄製於 2023 年 9 月 13 日。我們討論不同的…
閱讀更多您可以做些什麼來幫助治癒癲癇？
This is a recording of webinar which was held on October 20, 2021. This special session brought together the leaders from government, clinician-researchers, and advocates who devoted two years to…
閱讀更多提高罕見兒童癲癇的護理品質
This quality of care webinar was moderated by Gabrielle Conecker, mother to Elliott who has SCN8A-related epilepsy and severe DEE, and is Co-Founder of Wishes for Elliott and DEE-P Connections.…
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