Melu Riset
Ora didiagnosis
Diskusi DEE-P iki direkam ing 13 September 2023. Sajrone Diskusi DEE-P iki, kita njelajah pengalaman duwe anak sing kelainan epilepsi langka sing ora didiagnosis. Kita diskusi macem-macem…
Waca liyaneApa sing bisa ditindakake kanggo ngobati epilepsi?
This is a recording of webinar which was held on October 20, 2021. This special session brought together the leaders from government, clinician-researchers, and advocates who devoted two years to…
Waca liyaneNgapikake Kualitas Perawatan ing Epilepsi Bocah Langka
This quality of care webinar was moderated by Gabrielle Conecker, mother to Elliott who has SCN8A-related epilepsy and severe DEE, and is Co-Founder of Wishes for Elliott and DEE-P Connections.…
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