Participando en Investigación
Sen diagnosticar
Esta discusión DEE-P gravouse o 13 de setembro de 2023. Durante esta discusión DEE-P, exploramos a experiencia de ter un fillo cun trastorno de epilepsia rara non diagnosticado. Comentamos diferentes...
Le máisQue podes facer TI para axudar a curar as epilepsias?
This is a recording of webinar which was held on October 20, 2021. This special session brought together the leaders from government, clinician-researchers, and advocates who devoted two years to…
Le máisMellora da calidade da atención na epilepsia infantil rara
This quality of care webinar was moderated by Gabrielle Conecker, mother to Elliott who has SCN8A-related epilepsy and severe DEE, and is Co-Founder of Wishes for Elliott and DEE-P Connections.…
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