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  • Resource Center
    • Living With A DEE
      • Care At Home
        • Be Prepared
        • Transition of Care
        • Nursing Care
        • Equipment
        • Telemedicine
        • Dental Health
        • Therapies
        • COVID-19
        • COVID-19 Disruptions
      • Family Health
        • Siblings & Sibling Relationships
        • Caring for the Caregiver
      • Developmental & Epileptic Encephalopathies
      • SUDEP
      • Traveling With Your Medically Complex Child
      • Complex Care and Decision Making
      • Financial Support
      • Medicaid Access
      • Adaptive Technology, Communications
      • Quality Improvement Epilepsy Care
    • Seizure Management
      • Seizure Action Plans
      • Seizures – Rescue Medication
      • Seizures – Tracking And Monitoring
      • Seizures – Infantile Spasms
      • Epilepsy Surgery
      • VNS, DBS, and RNS
      • Off-Label & Repurposed Meds
      • Gene Therapies
      • Alternative Treatments
        • Seizures – CBD
        • Ketogenic Diet
    • Non Seizure Challenges
      • Autism, Related Disorders
      • Autonomic Disorders
      • Behavioral Issues
      • Cardiac Conditions
      • Communication
      • CVI/Vision Issues
      • Endocrine Issues
      • GI Issues
      • Orthopedic Issues
      • Sleep Issues
    • Diagnosis
      • Seizures – Types
      • Genetic Testing
      • Genetic Modifiers and Biomarkers
    • Research
      • Brain Tissue Donation
      • Clinical Trials
      • Curing the Epilepsies
      • The Inchstone Project
      • Managing Your Data
      • Participating In Research
      • Promoting Research
      • Education
    • Financial Support Resource Center
  • Inchstone Project
  • Advocacy
  • About Us
    • Contact
    • DEE-P Core Sponsors
    • Partner With Us
  • DEE-P Blog
  • Dinner on DEE-P

Posts Tagged ‘epilepsy care’

Improving the Quality of Care in Rare Childhood Epilepsy

This quality of care webinar was moderated by Gabrielle Conecker, mother to Elliott who has SCN8A-related epilepsy and severe DEE, and is Co-Founder of Wishes for Elliott and DEE-P Connections.…

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