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  • Resource Center
    • Living With A DEE
      • Care At Home
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      • Family Health
        • Siblings & Sibling Relationships
        • Caring for the Caregiver
      • Developmental & Epileptic Encephalopathies
      • SUDEP
      • Traveling With Your Medically Complex Child
      • Complex Care and Decision Making
      • Financial Support
      • Medicaid Access
      • Adaptive Technology, Communications
      • Quality Improvement Epilepsy Care
    • Seizure Management
      • Seizure Action Plans
      • Seizures – Rescue Medication
      • Seizures – Tracking And Monitoring
      • Seizures – Infantile Spasms
      • Epilepsy Surgery
      • VNS, DBS, and RNS
      • Off-Label & Repurposed Meds
      • Gene Therapies
      • Alternative Treatments
        • Seizures – CBD
        • Ketogenic Diet
    • Non Seizure Challenges
      • Autism, Related Disorders
      • Autonomic Disorders
      • Behavioral Issues
      • Cardiac Conditions
      • Communication
      • CVI/Vision Issues
      • Endocrine Issues
      • GI Issues
      • Orthopedic Issues
      • Sleep Issues
    • Diagnosis
      • Seizures – Types
      • Genetic Testing
      • Genetic Modifiers and Biomarkers
    • Research
      • Brain Tissue Donation
      • Clinical Trials
      • Curing the Epilepsies
      • The Inchstone Project
      • Managing Your Data
      • Participating In Research
      • Promoting Research
      • Education
    • Financial Support Resource Center
  • Inchstone Project
  • Advocacy
  • About Us
    • Contact
    • DEE-P Core Sponsors
    • Partner With Us
  • DEE-P Blog
  • Dinner on DEE-P

Posts Tagged ‘Medical parent’

Stronger Together: Reflections from the FamilieSCN2A Conference

Every story within our DEE community carries its own weight, wisdom, and wonder. This past August, our team had the privilege of attending the FamilieSCN2A conference in Denver to not…

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