This is a recording of the webinar “Complex Continual Care for those with living DEEs and their families,” which was held on November 30th, 2021. Pediatric hospice support is not your grandparents end-of-life care. Come learn how pediatric complex continual (aka hospice or palliative) care can help improve quality of life for medically complex children and their families.

Join us to hear more about if and when pediatric hospice support might be right for your family and learn about models that provide a continuum of care for children and their families from time of diagnosis, maintaining hope for a cure, and through bereavement, if a cure is not attained.

OUR PANELISTS WERE:

Terry Pratt – retired with 34.5 years of Federal Service – 10 years with the Social Security Administration’s (SSA) Division of International Operations and the balance with the Centers for Medicare
& Medicaid Services (CMS). She, specialized in working with a range of stakeholders to develop unique and innovative Medicaid long-term care programs for our nation’s most vulnerable populations; e.g., home and community based service waivers, the Program of All Inclusive Care for the Elderly (PACE), hospice, and the Chi Program of All Inclusive Coordinated Care for Children (ChiPACC). She is currently an active member of the Chi Board of Directors.

and

Tara Hoit is the Executive Director of Capital Caring Kids, a regional pediatric palliative and hospice organization serving southern Maryland, DC and northern Virginia. Tara is a certified children’s grief counselor, End of Life Nursing Education Consortium Pediatric Trainer and has 12 years of children’s hospice program development experience. Tara lives in Virginia with her husband and two college kids. In her spare time she gardens and performs improvisational acting.

Watch directly on YouTube or stream below.

To learn more about medical, care and support or research topics for DEE families, visit our Resource Center.