Posts Tagged ‘family’
Real Moms, Real Stories: Advocacy That Inspires
Join us, for an inspiring and down-to-earth conversation with six incredible moms who are walking the path of advocacy for their disabled children. They’ll share personal stories—real, raw, and powerful—about…
اقرأ أكثرDEE-P Chat: Relationships 101 Follow-up
Join us, for a follow up with your partner for a “DEE-P Chat” with other couples to feel seen and heard. Amanda and Anne will be in attendance to answer…
اقرأ أكثرإدارة الرحلة مع طفلك المعقد
في هذه المحادثة، ستقابل بليث لورد - والدة كاميرون التي كانت تعاني من اضطراب وراثي وتوفيت عن عمر يناهز الثانية. وهي مؤسسة...
اقرأ أكثرمنع إرهاق مقدمي الرعاية: ورشة عمل حول بناء القدرة على الصمود
عُقدت ورشة العمل هذه حول بناء المرونة ومنع إرهاق مقدمي الرعاية مع ثنائي رائع من الأم وابنتها - أم STXBP1 والأخصائية الاجتماعية، أميليا سيرافيا دير ووالدتها،...
اقرأ أكثرعلاج توهين النمو – كل ما تريد وتحتاج إلى معرفته
انضم إلينا لمعرفة المزيد عن علاج توهين النمو (GAT) - وهو تدخل لتحقيق البلوغ المبكر من أجل تقليل النمو النهائي للطفل. منذ عام 2006،…
اقرأ أكثرPediatric Hospice Support & Care
This is a recording of the webinar “Complex Continual Care for those with living DEEs and their families,” which was held on November 30th, 2021. Pediatric hospice support is not…
اقرأ أكثرSaving Our Telehealth for DEE Families
This is a recording of the webinar “Saving Our Telehealth,” which was held on July 20th, 2020. For families who have trouble leaving the house with their medically fragile children,…
اقرأ أكثرPromoting Healthy Relationships between Those with Severe Epilepsy and Their Siblings
Have you struggled with how to manage the relationships between your medically complex children and their more typically developing siblings? Are you a sibling to someone with severe epilepsy and…
اقرأ أكثرStrategies for Learning at Home with your DEE Child and Engaging the Whole Family
This is a recording of the DEE-P Connections webinar from May 13, 2020 “Strategies for Fun and Learning at Home for Kids with DEEs and the Whole Family” which explored…
اقرأ أكثرCOVID -19 Through the Lens of Grief
DEE-P Connections planned this webinar in coordination with The Wendt Center for Loss and Healing. This is a recording of the webinar originally broadcasted on April 14, 2020. The webinar…
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