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Real Moms, Real Stories: Advocacy That Inspires
Join us, for an inspiring and down-to-earth conversation with six incredible moms who are walking the path of advocacy for their disabled children. They’ll share personal stories—real, raw, and powerful—about…
Les merDEE-P Chat: Relationships 101 Follow-up
Join us, for a follow up with your partner for a “DEE-P Chat” with other couples to feel seen and heard. Amanda and Anne will be in attendance to answer…
Les merAdministrer reisen med det komplekse barnet ditt
I denne samtalen vil du møte Blyth Lord – mor til Cameron som hadde en genetisk lidelse og gikk bort i en alder av 2. Hun er grunnleggeren av...
Les merPreventing Caregiver Burnout: A Workshop on Building Resilience
Denne workshopen om å bygge motstandskraft og forebygge omsorgsutbrenthet ble holdt med en fantastisk mor-datter-duo – STXBP1-mor og sosialarbeider, Amelia Seraphia Derr og hennes mor,...
Les merGrowth Attenuation Therapy – Everything you want and need to know
Join us to learn more about growth attenuation therapy (GAT) – an intervention to bring on early puberty in order to reduce the ultimate growth of a child. Since 2006,…
Les merStøtte og omsorg for pediatrisk hospice
This is a recording of the webinar “Complex Continual Care for those with living DEEs and their families,” which was held on November 30th, 2021. Pediatric hospice support is not…
Les merRedder vår telehelse for DEE-familier
This is a recording of the webinar “Saving Our Telehealth,” which was held on July 20th, 2020. For families who have trouble leaving the house with their medically fragile children,…
Les merFremme sunne forhold mellom de med alvorlig epilepsi og deres søsken
Have you struggled with how to manage the relationships between your medically complex children and their more typically developing siblings? Are you a sibling to someone with severe epilepsy and…
Les merStrategier for å lære hjemme med DEE-barnet ditt og engasjere hele familien
This is a recording of the DEE-P Connections webinar from May 13, 2020 “Strategies for Fun and Learning at Home for Kids with DEEs and the Whole Family” which explored…
Les merCOVID-19 gjennom sorgens linse
DEE-P Connections planned this webinar in coordination with The Wendt Center for Loss and Healing. This is a recording of the webinar originally broadcasted on April 14, 2020. The webinar…
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